Understanding Sickle Cell

What is Sickle Cell Disease?

Sickle Cell Disease (SCD) is a blood disorder that affects red blood cells. Instead of being round and flexible, the cells become stiff and shaped like a sickle (a curved tool). This makes it hard for them to move through blood vessels, causing blockages and pain.

Inherited Condition: A child gets SCD when both parents pass on the sickle cell gene.
Not contagious: It cannot be spread from one person to another.
Common in Africa: Especially in regions where malaria is or was common.

Watch and Learn

This short video explains how sickle cell affects the body and how individuals and communities can support those living with it.

How It Affects the Body

The sickle-shaped cells can block blood flow, reducing oxygen delivery to parts of the body. This can cause severe pain, tiredness, and infections.

Pain Episodes

Blockages in blood flow can cause sudden pain known as a crisis.

Fatigue

Less oxygen means less energy, making one feel tired or weak.

Infections

The spleen (which helps fight infection) may not work well, increasing vulnerability to illness.

Living Well with SCD

With care and support, people with SCD can live long, fulfilling lives. At Nia CBO, we work with caregivers, families, and youth to build awareness and promote wellness.

Stay hydrated and rest when tired.
Avoid extreme temperature shifts.
Keep up with medical checkups and vaccinations.
Eat a balanced diet and take prescribed medicines like folic acid.

Want to learn more? Visit our What is Sickle Cell page or connect with our Nia CBO team in Kibera.